Category Archives: Parenting Your Parents – The Book

Alzheimer’s vs Dementia – A Layman’s Explanation

Since my mother was diagnosed with Alzheimer’s three years ago, many friends and acquaintances have asked me if I can tell the difference between Alzheimer’s and dementia.  Some have even described their own actions to see if I think it might be the beginning signs of Alzheimer’s.  I can only respond based on my personal experience and research.

Through research, I found out that dementia is a term used to describe a group of brain disorders that includes Alzheimer’s. These brain disorders generally cause memory loss and make it harder to carry out daily tasks.

Alzheimer’s disease is the most common form of dementia. According to the Alzheimer’s  Association, as many as 5.2 million people in the U.S. have the disease. Alzheimer’s attacks the brain, slowly killing different parts until it finally affects a crucial body function that results in death.  It affects each person differently, attacking different parts of the brain in different ways and on a different schedule.

More than memory loss, my family first noticed a change in my mother’s behavior.  Yes, she forgot things, but more importantly she stopped doing the things she took pride in and loved to do.  She stopped gardening and cooking, two of her most extraordinary talents.  She stopped cleaning the house and washing clothes, as though she could no longer see when something needed attention.   She lost her thirst for knowledge, stopped reading the paper and lost her ability to have a good conversation.  So to us, the fact that she forgot what happened yesterday became secondary to the dramatic changes in her habits, hobbies and love of life.

She was a gourmet chef, yet she quickly deteriorated to not even pouring herself a glass of milk.  Her garden was spectacular but she lost all interest.  She used to be the life of the party and made everyone feel at home, but she became scared of the unknown and people she didn’t recognize.  Where she used to exercise and pride herself on being 5’2”, 105 pounds and a size 6, she is now 5’2”, a size 14 and forgets that she used to swim or walk up to five miles a day.

Again, this debilitating disease affects each person differently and my family still has a few things to be thankful for… Mom still remembers all of us (children and grandchildren), loves to be loved and continues to play the piano with gusto.  On the downside, she still corrects our grammar, pronunciation and now swears like a sailor!

Welcome to Senior Care Stories

By Joe Ponepinto

As children we rely on our parents for nurture and safety, guidance and compassion—in short, everything we need to realize our place in the world. For many adults, the roles eventually become reversed, and we can find ourselves caring for the loved ones who raised us, helping them cope with physical and mental infirmities. Those situations can carry not only heavy burdens on our time and finances, they often tax our emotional capacities and affect many other aspects of our lives. Senior Care Stories is a forum designed to help adults who are caring for aging parents cope with feelings and frustrations by allowing them to share their experiences with other caregivers. We also hope that the blog will foster an exchange of helpful tips and information that make the task of senior care a little easier.

According to a recent USA Today/ABC News/Gallup Poll, about 41 percent of baby boomers are helping care for an aging parent, and nearly half of those who aren’t worry about being able to do so in the future. Dozens of books and Web sites have been created to provide medical and professional advice to help them fulfill this obligation. Senior Care Stories, however, seeks to address other needs—to provide practical, day-to-day advice on making the best of a difficult situation, and to create a network of understanding and support among adults dealing with their deteriorating parents.

The editors of Senior Care Stories are also planning to compile the most helpful and poignant comments we receive into a book. The 100 stories in the book will come from a cross-section of people. Each will take a page or two. Some will be humorous, others heartwarming. All will include suggestions for coping with the specific problems of dealing with aging parents, be it a new technique or a new outlook. Help can be as simple as framing a simple trip to the theater as an adventure, or understanding a parent’s need to retain his or her dignity despite failing health or acuity. And all the stories will seek to assure those dealing with aging parents that there are many others going through the same set of emotions, and there are resources to make the journey easier.

More details about the book later.